What's new in the childhood cancer registry?

07.07.2017 14:31

Symposium on the national strategy against cancer – June 21, 2017 “The Chances of an Integrated Care Organisation”

Claudia Kuehni, head of the Swiss Childhood Cancer Registry (SCCR), was one of three presenters at “The Chances of an Integrated Care Organisation”, a half-day symposium organised on June 21, 2017, in connection with the Federal Office of Public Health’s National Strategy Against Cancer 2014 -2017.
The symposium was attended by representatives from various oncology groups, public and private NGO’s (Krebsliga Schweiz, SPOG, Kinderkrebshilfe Schweiz, Kinderkrebsschweiz), cantonal cancer registries, and the Federal Statistical Office.

In her presentation “The contribution of cancer registries to care: the Swiss Childhood Cancer Registry”, Kuehni called attention to the advantages of the SCCR’s broad data collection for research into the causes, therapy, late affects and aftercare of childhood cancer. This comprehensive collection of data improves collaboration between physicians, parents and families and contributes to improved treatment and aftercare, she said.

Nicolas von der Weid, Head of the Pediatric Hematology/Oncology Unit and deputy head of Pediatrics at the University Children's Hospital Basel, UKBB, addressed the topic of therapy and the long-term effects of care. The third presenter, Birgitta Setz, manager of Kinderkrebshilfe Schweiz, spoke on the needs and desires of patients and their families. . http://www.oncoletter.ch/NSK-Kinder-mit-Krebs.html

According to the Federal Office of Public Health (FOPH), “cancer is and remains one of the greatest challenges for our healthcare system”. The National Strategy Against Cancer (NSK) aims to improve prevention and treatment by promoting the coordination of strategies and measures in seven areas: monitoring, early detection, diagnosis, therapy, care, psychooncology and palliative care.
In the preface to its report National Strategy Against Cancer 2014-2017, the health office maintained that if all cancer organisations, professional societies and associations, research institutions, and federal and cantonal government authorities would work closely together, these goals could be achieved.


© ISPM - University of Bern 2016