Registry approval of the Swiss Childhood Cancer Registry

Until June 2014, the Swiss Childhood Cancer Registry had a general registry approval by the Federal Commission of Experts for professional secrecy in medical research. Since January 2014 the new Human Research Act and its three ordinances are in place that provides the new framework for the SCCR. Instead of the Swiss Federal Commission of Experts for professional secrecy in medical research, data collection and storage by the SCCR now require an authorization by the ethics committee of the canton of Bern. The general authorization has been replaced in July 2014 by an approval from the ethics committee of the canton of Bern. This approval permits the collection of data of cancer illnesses in children and adolescence throughout Switzerland. The patients or their parents can request to the treating doctor not to forward his/her data (veto power).

The patient's data are kept strictly confidential in accordance with the requirements of the Data Protection Act. The work of the childhood cancer registry makes an important contribution to the improvement of the treatment of all children suffering from cancer. Therefore, we are grateful if we may collect and evaluate the information from possibly to every child.

Further information

  • Human Research Act (HFG)
  • Ethics committee of the canton of Bern (KEK)
  • Text proposal for insertion in the patient's information brochures of hospitals and medical centres (In German, French, Italian). (download)
  • Text proposal for a short patient information (for distrubting to patients or for display):
    German, French, Italien

 

 

© ISPM - University of Bern 2016